I am immensely proud of this documentary, which I helped to concept and oversaw the creative effort, from start to finish, for Eisai Pharmaceuticals. Eisai came to us, at Real Branding, with an unbranded, advocacy effort, aimed at raising awareness and support for Lennox-Gastaut syndrome (LGS), a rare and severe form of epilepsy. It's not common, but its impact is deep and devastating, often resulting in hundreds of seizures in a single day. This condition can cause developmental, physical and other disorders, as well, usually requiring a nearly full time commitment from parents of children that are affected.
However, despite these hardships and challenges, the stories of small victories and hope are astounding. Therefore, our approach was to capture several such stories from real people; families that have been living with LGS, for some time, that have managed to gain a level of control over the seizures, allowing them to find joy in the type of everyday accomplishments that most of us take for granted.
This was an intense, but incredibly rewarding project, during which I had the benefit of meeting wonderful people that granted us access to their homes, experiences and expertise. By doing so, they furnished us with the content we needed to create a film that we hope will help to spread the awareness and support that is deeply needed for this condition.
I encourage you to take a half hour and watch this film. It is tough, at times, but it is also energizing and inspiring. I only wish I could have used all of the great footage that we got, as this could easily have made a feature film. If you happen to work at a TV network or would otherwise like to broadcast this film, please contact me; I would be more than happy to help make that happen.
I commend Eisai for supporting this endeavor. It is unlike anything they, or most pharmaceutical companies, have done before and we are proud to be their partner. Let's hope it helps the people and families living with LGS to live better lives, even if just a little bit.
I also have to deeply thank our production partner, NBTV Studios, who, as always, went far above and beyond to help us turn an ambitious idea into a beautiful reality.
For more information about LGS, please visit LivingWithLGS.com and LGSFoundation.org
CREDITS
Featuring
Mother
Denae Ayers
Daughter
Heather Ayers
Father
Jim Nigro
Son
James Nigro
Neurologists
Tracy A. Glauser, M.D.
John M. Pellock, M.D.
Social Worker
Patricia Gibson
President of LGS Foundation
Christina SanInocencio
Also Appearing
Heather’s Father
Robert Ayers
Heather’s Sister
Victoria Ayers
Heather’s Sister
Brittany Carlton
Heather’s Sister
Sarah Carlton
Occupational Therapist
Candace Anderson
Jim Nigro’s Fiancée
Mandy Ayars
James’s Sister
Rebecca Nigro
Patient #1’s Mother
Deborah Pryor
Patient #1
Heather Pryor
Patient #2's Mother
Kathy Rosel
Patient #2
Candace Rosel
Certified Pediatric Nurse Practitioner
Cornelia Gonsalves
PRODUCTION
Director
Jeff Kennedy
Creative Director & Story Producer
Tarah Feinberg
Produced by Real Branding LLC
Managing Director, NY
Alan Feldenkris
Executive Creative Director
Brian Brown
Account Manager
Thomas Padula
Production Services Provided by NBTV Studios
Executive Producer
Brant Kantor
Executive Producer
Nick Buzzell
Production Supervisor
Nicole Schoonover
Travel Coordinator
Eirene Mirones
Director of Photography
Jeff Kim
1st Assistant Camera
Kenny Thompson
Gaffer
Yusuke Naito
Sound
Mike Silvestri
Hair/Makeup
Christina Turino
Technical Supervisor & Post
Mike Buzzell
Editor
Josh Miller
Additional Editor
Dave Gutt
Assistant Editors
Logan Seaman
Chase Finn
Composer
John Plenge
Production Assistants
Alex Blakenev
Ryan Evans
Logan Seaman
Special Thanks to Caring Hands Pediatric Therapy, Winston-Salem, NC
Developed by Eisai Inc. in cooperation with the LGS Foundation